Before 2003, Cystinosis research was minimally and sporadically funded. Today the Cystinosis Research Foundation is the largest fund provider of Cystinosis research worldwide. The Cystinosis Research Foundation’s mission is two-fold and focused: to find better treatments and a cure for cystinosis.
They are currently funding 48 research studies and 13 fellows worldwide. Recent studies have shown much promise for a future cure for Cystinosis, as well as paving the way for finding cures for other neurodegenerative diseases, including but not limited to Batten Disease, Parkinson's Disease, Steatohepatitis, and Huntington's Disease.
Tina’s Hope for a Cure is a nonprofit 501(c)(3) organization set up by family and friends of Tina Flerchinger. After meeting with a handful of researchers, pharmaceutical representatives, as well as physicians who work with the Cystinosis Research Foundation, we are convinced that a cure is on the horizon. These dedicated professionals won’t stop until they find a cure. We’ve heard each of them say the only thing keeping us from a cure is money for research. It is our mission to raise money for Cystinosis research, in the hope of finding a cure, sooner rather than later, for Tina and others who suffer the effects of Cystinosis.
Tina’s Hope for a Cure is a nonprofit, tax-exempt entity pursuant to Section 501(c)(3); Federal Tax ID #80-0283749. 100% of all proceeds go directly to the Cystinosis Research Foundation to support medical research. Your gift is tax deductible.
